Never Give Up - Two Decades of Struggles From Diagnosing Their Children to Starting a Clinical Trial For Aspartylglucosaminuria with Rare Mom Julia Taravella

Never Give Up - Two Decades of Struggles From Diagnosing Their Children to Starting a Clinical Trial For Aspartylglucosaminuria with Rare Mom Julia Taravella

Once Upon A Gene

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Resumen

A mother's journey in diagnosing her two sons' rare genetic disorder and her subsequent research efforts leading to clinical trials.

Etiquetas
rare disease research clinical trials genetic disorder family experience
Participantes (2)
  • Unknown
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Fecha de Publicación: 26 de enero de 2023

Duración: 53 min

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ONCE UPON A GENE - EPISODE 171 Never Give Up - Two Decades of Struggles From Diagnosing Their Children to Starting a Clinical Trial For Aspartylglucosaminuria with Rare Mom Julia Taravella Julia Tar…

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Never Give Up - Two Decades of Struggles From Diagnosing Their Children to Starting a Clinical Trial For Aspartylglucosaminuria with Rare Mom Julia Taravella

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