Being Brave, Curious and Motivated to Help Make a Difference with DLG4 Research Mama Payal Patel
Podcast: Once Upon A Gene
Autor:Effie Parks
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Resumen
A new parent advocate shares her journey of learning to navigate the rare disease community and the challenges and triumphs of starting a foundation for her child's rare genetic disorder.
Participantes (2)
- Effie Parks
- Pail Patel
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Descripción del Episodio
ONCE UPON A GENE - EPISODE 168 Being Brave, Curious and Motivated to Help Make a Difference with DLG4 Research Mama Payal Patel I met Payal Patel at the 2022 Global Genes Patient Advocacy Summit. Sh…
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