A Courageous Gift - The Power of Brain and Tissue Donation in Rare Disease Research with Anne Rugari
Podcast: Once Upon A Gene
Autor:Effie Parks
Análisis del Episodio
Resumen
A conversation about the experience of donating a child's brain and tissue for Krabbe disease research and the importance of pre-planning such donations.
Participantes (2)
- Effie Parks
- Ann Regnery
Escuchar Episodio
Descripción del Episodio
ONCE UPON A GENE - EPISODE 214 A Courageous Gift - The Power of Brain and Tissue Donation in Rare Disease Research with Anne Rugari Anne Rugari is an advocating powerhouse, an author of two children…
Episodios Relacionados
-
Finding Joy in the Journey: A Guide for Parents of Medically Complex Kids with Amber Pierson & Chelsea Kuhn junio 5, 2025
-
From Beast Games Champ to Rare Disease Warrior: Jeff Allen’s 365-Mile Ruck for His Son’s Creatine Transporter Deficiency mayo 15, 2025
-
GeneDx Launches Cerebral Palsy Genetic Testing Pillar & Discover Snapshot: For Deeper Insights and to Help You Grow Your Patient Community – with Gay Grossman mayo 1, 2025
-
Empowered Kids - Painless Labs :O'Ryan Health’s At‑Home Blood‑Draw Revolution with Tim Coleman abril 18, 2025
-
Navigating the Complexities of Grief: How One Mother’s Grief Birthed a Supportive Community with, Heather Straughter. marzo 27, 2025