A Rare Collection - Exhausted and Energized

A Rare Collection - Exhausted and Energized

Once Upon A Gene

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Resumen

A passionate advocate recounts their exhausting but exhilarating week in Washington D.C., attending a rare disease conference, marked by impactful meetings, powerful stories, and the first-ever approval of a new therapy.

Etiquetas
rare diseases conférence advocacy patient advocacy fda approval
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Fecha de Publicación: 16 de marzo de 2023

Duración: 12 min

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Descripción del Episodio

ONCE UPON A GENE - EPISODE 178 A Rare Collection - Exhausted and Energized There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people…

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A Rare Collection - Exhausted and Energized

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